tag:blogger.com,1999:blog-2180774988431185054.post550944125607311814..comments2023-07-14T15:26:10.403+01:00Comments on Just Doing Katie: The Girl: Living With A CholesteatomaAnonymoushttp://www.blogger.com/profile/12044759482586090442noreply@blogger.comBlogger20125tag:blogger.com,1999:blog-2180774988431185054.post-7794815765178328272017-02-19T04:17:11.219+00:002017-02-19T04:17:11.219+00:00Found really good website
Entkent.com cholesteato...Found really good website<br />Entkent.com cholesteatoma. SoundS like a good doctor. Also Dr. FINA in Minnepolis Minnesota is doing robotic surgery. Amazing to hear about all these since it is rare. Question: why don't doctors do more to keep tubes open? One told me "we don't do that anymore, but u can buy a hearing aid.".. Went to 4 ent doctors b4 first ding this crazy thing.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2180774988431185054.post-19417873060590258732017-01-25T06:01:00.099+00:002017-01-25T06:01:00.099+00:00How can you tell you have cholesteatoma back last ...How can you tell you have cholesteatoma back last year i find i have cholesteatoma and for 2 week i woke up my bed have blood what does it mean<br />Anonymoushttps://www.blogger.com/profile/09346918289630607201noreply@blogger.comtag:blogger.com,1999:blog-2180774988431185054.post-17090078338546078602016-08-25T02:37:22.035+01:002016-08-25T02:37:22.035+01:00Thank you so much for writing this...I'm havin...Thank you so much for writing this...I'm having a tympanomastoidectomy in 5 days to remove the Cholesteatoma in my left ear, along with a septoplasty and urbanite reduction at the same time. It's great know that there really are others out there that have gone through this too. Dillonhttps://www.blogger.com/profile/07022340498873377962noreply@blogger.comtag:blogger.com,1999:blog-2180774988431185054.post-23755065012201427862016-07-01T05:21:20.788+01:002016-07-01T05:21:20.788+01:00Hey Katie. I have a few questions or you about ur ...Hey Katie. I have a few questions or you about ur ears. Could you send me ur email so I could message you there? I'm also going through this now and would like to talk to someone who's already been there.<br />Thanks Anonymoushttps://www.blogger.com/profile/12343236214940730037noreply@blogger.comtag:blogger.com,1999:blog-2180774988431185054.post-52726021006500443132016-01-23T00:35:17.386+00:002016-01-23T00:35:17.386+00:00Hiya, I have come across your page after desperate...Hiya, I have come across your page after desperately searching for advice with no luck. I am due to have my operation within the next 2 months. I have been experiencing severe pain for the past 2 weeks. I am currently taking tramadol, ibrufeen and co cocodamol as directed by my doctor which is helping but I am still having sharp pains (the type you can't help but call out loud) is this normal and why is it so painful? Has anyone else experienced this? I have a very high pain threshold and over the last 5 months have been able to deal with the discomfort without the need of pain relief xAmylouhttps://www.blogger.com/profile/08898377048223335914noreply@blogger.comtag:blogger.com,1999:blog-2180774988431185054.post-52792088140130014052015-10-05T18:13:48.001+01:002015-10-05T18:13:48.001+01:00Hello. My husband had two surgeries of cholesteato...Hello. My husband had two surgeries of cholesteatoma already. Now his last MRI describes a highly suggestive cholesteatoma. Does anyone know if it is possbile to do a thrd surgery? Iam really afraid. ThanksNoeminoreply@blogger.comtag:blogger.com,1999:blog-2180774988431185054.post-82646979537644343892015-08-22T18:17:28.001+01:002015-08-22T18:17:28.001+01:00I was diagnosed cholesteatoma since 3 years. now, ...I was diagnosed cholesteatoma since 3 years. now, i have inserted grommet and hearing is improved. but, when air inside stomach coming out through that grommet opening, i feel pain in ear. is there anyone who inserted grommet for cholesteatoma? i am afriad that it can make worse for disease. Anonymoushttps://www.blogger.com/profile/16589886695098921610noreply@blogger.comtag:blogger.com,1999:blog-2180774988431185054.post-81205366563536935602015-06-21T22:36:25.683+01:002015-06-21T22:36:25.683+01:00I had cholesteatoma for many years undiagnosed got...I had cholesteatoma for many years undiagnosed got said I had it when I was 5 diagnosed 2012 lots of issues come with undiagnosedAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2180774988431185054.post-10113982830197783522015-06-13T15:38:39.237+01:002015-06-13T15:38:39.237+01:00Hi my 6 year old son has just been diagnosed with ...Hi my 6 year old son has just been diagnosed with chlosueatoma, he went in hospital for grommets and they could only put them in one ear because of what they found, they are unsure tho as no bone has eroded, we're just waiting for surgery date now I'm petrifiedAnonymoushttps://www.blogger.com/profile/17755344859535753134noreply@blogger.comtag:blogger.com,1999:blog-2180774988431185054.post-3781335507866821442015-03-29T23:01:46.544+01:002015-03-29T23:01:46.544+01:00Hi Katie my son suffered from.a chlosteatoma and h...Hi Katie my son suffered from.a chlosteatoma and had 2 operations to date one to remove it and 2nd one reconstructive surgery now after 2 years he developed an aural polyp in his ear I don't know if chlosteatoma is,present yet until the polyp has come down did you ever have this? Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2180774988431185054.post-36774448548227573602014-12-05T21:46:21.347+00:002014-12-05T21:46:21.347+00:00Hi Katie
I really appreciate your blog, I have ne...Hi Katie<br /><br />I really appreciate your blog, I have never come across someone else with the same awful experience as myself.<br /><br />It's been awhile since you wrote this blog, how are you doing now.<br /><br />I have had two ear ops to remove cholsmtoma and have a titanium implant.<br /><br />I am not waiting for a third op in four years to remove more cholsmtoma.<br /><br />I would love to hear from you.<br /><br />Kind regards <br /><br />Mike Brooks<br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2180774988431185054.post-71650427454329183742014-11-21T21:19:45.516+00:002014-11-21T21:19:45.516+00:00Hi Katie,
Thanks for this, I feel like it's g...Hi Katie, <br />Thanks for this, I feel like it's good to hear from others when times are a bit rough-currently waiting for a scan to check things are ok but it doesn't feel like it. I hope you're doing well and the ear(s) aren't causing too much trouble. <br />Amy amzhttps://www.blogger.com/profile/08811424163574435924noreply@blogger.comtag:blogger.com,1999:blog-2180774988431185054.post-52496799359597267552014-11-21T21:15:13.638+00:002014-11-21T21:15:13.638+00:00Hi Katie,
Thanks for posting this up. Always good...Hi Katie, <br />Thanks for posting this up. Always good to know you're not alone when things are a bit rough, as they are currently here. I hope you're doing well and the ear isn't causing too much trouble! <br /><br />Thanks again! <br />Fellow blogger :)amzhttps://www.blogger.com/profile/08811424163574435924noreply@blogger.comtag:blogger.com,1999:blog-2180774988431185054.post-19270392267751558172014-09-30T22:35:37.871+01:002014-09-30T22:35:37.871+01:00Dear Katie: Thank you for posting. We are not alon...Dear Katie: Thank you for posting. We are not alone. This is a silent disease that impacts the quality of life (hearing, balance and constant fear of another grueling surgery). Best to us all who endure life with the cholesteatoma.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2180774988431185054.post-11698394932732378762014-05-03T11:30:08.275+01:002014-05-03T11:30:08.275+01:00It's always good to see a "happy" st...It's always good to see a "happy" story, I was diagnosed with a cholesteatoma when I was 12.<br /><br />After many doctor trips and groumets it was diagnosed after the cholesteatoma got to it's worst stage and cause facial paralysis on the left side of my face. <br /><br />I was bullied all throughout high school and it's a burden I live with everyday that breaks my heart. <br /><br />I wish more people and doctors knew about it so no one else gets miss diagonosed to the point that they end up with what happen to me. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2180774988431185054.post-46177866551910829752014-04-18T14:15:37.111+01:002014-04-18T14:15:37.111+01:00Hope you're feeling much better now- it's ...Hope you're feeling much better now- it's a daily battle isn't it.<br />Sending my love x Anonymoushttps://www.blogger.com/profile/12044759482586090442noreply@blogger.comtag:blogger.com,1999:blog-2180774988431185054.post-50650775562123689172014-04-18T14:15:01.034+01:002014-04-18T14:15:01.034+01:00Hope your little girl is ok and all went well x Hope your little girl is ok and all went well x Anonymoushttps://www.blogger.com/profile/12044759482586090442noreply@blogger.comtag:blogger.com,1999:blog-2180774988431185054.post-55262327612739588692014-04-14T23:19:35.753+01:002014-04-14T23:19:35.753+01:00Reading your story reliesing I'm not alone .I&...Reading your story reliesing I'm not alone .I've had problems with my hearing since I was 5 mgs messed up with my surgery and now I'm in my forties they discover mastoid tumours behide both inner ear eating away a bone .I've had surgery a week ago but have been very I'll with headaches loss of memory and dizzy but lucky to be here as I had no bone left one of my mastoid growths was the size of a 10p .hopefully it has been resolved .thanks for your blog mass-fxhttps://www.blogger.com/profile/06768947031640443214noreply@blogger.comtag:blogger.com,1999:blog-2180774988431185054.post-45921394514339064932014-03-31T07:54:30.067+01:002014-03-31T07:54:30.067+01:00Hi katie, thanks for writing this blog as my littl...Hi katie, thanks for writing this blog as my little girl is going in for mastoid surgery next month and I am terrified but reading your story I knoe how important its is she has it done. Thanks again.<br />c Anonymoushttps://www.blogger.com/profile/13845402334340828218noreply@blogger.comtag:blogger.com,1999:blog-2180774988431185054.post-67959035645898289982014-03-27T13:56:25.303+00:002014-03-27T13:56:25.303+00:00I came to your page and noticed you could have a l...I came to your page and noticed you could have a lot more visitors. I have found that the key to running a popular website is making sure the visitors you are getting are interested in your niche. There is a company that you can get traffic from and they let you try their service for free. I managed to get over 300 targeted visitors to day to my site.<br /><br />if any body want to know extra information<br />Then visit www.otovent.seAnonymousnoreply@blogger.com